Showing posts with label PMS. Show all posts
Showing posts with label PMS. Show all posts

Thursday, May 28, 2015

EDS and PMS (heh.)


Things that don't occur when you don't have chronic pain/Ehlers Danlos Syndrome: already atrociously bad PMS pain increases x2390583409853098. 



Who do you see when this happens? A reproductive endocrinologist, duh. (A subcategory of GYN--also its own mindfuck.) Don't feel bad if you don't know this--I didn't either. 



I started noticing over the last 6 months, I was starting to have a serious increase in pain, nausea, dizziness around my 10 day mark, 5 day mark and 3 day mark (I know, specific.) . It would always foil my plans of exercising, doing errands, attempting to live like a somewhat normal human being, etc. 


Ironically, like I'm finding with most things, most of my "hunches" (and maybe what peers and naive observers would consider "hypochondriacal observations") turned out of course to be a real thing, like usual. After aggressively researching and consulting with reproductive endocrinologist, I found that progesterone is a hormone that loosens the joint, understandably, for childbirth--and it's what has been aggressively fucking me over (for lack of a better phrase) for months. 



(Side note: after some research and phone calls, I found out who all the (slight sarcasm) reproductive endocrinologists were in the area and one was the father of a good acquaintance from high school--who no doubt, wants to be in fashion design. In exchange for some advice, I got an apportionment within a week for what usually takes months! It's all about the craftiness, people. And proof that knowing a thing or two about fashion does come in handy in very odd scenarios periodically--no pun intended.)



Anyway, for all the information I overloaded this poor doctor with, he was incredibly sweet, accommodating (and like most new doctors who are totally shocked how self aware I am and the depth of my knowledge on this particular subject), mildly overwhelmed. His first comment after my 15 minute long spiel about me and my mother's conspiracy theory about progesterone, EDS and all over my shitty metabolic reactions to medication/birth control, his first comment was simple and something I totally missed...because when you're so detail oriented you miss the big picture.

Him: "Well do you even want or need a period?"
Me: (Without thinking twice about what was about to come out of my damn mouth) "HA.. NO! I would have a hysterectomy if I knew I didn't want or couldn't have kids in a heartbeat!" 

Ah, the plight of an oversharer. 

He explained to me that I could change my Nuvaring every 3 weeks and use a new one right away to skip all the wild hormone spikes I was desperately trying to adapt to. Hopefully just exchanging it after 3 weeks instead of for will keep everything stable and I'll never need to deal with periods ever again. And, bonus points, I don't have to go off of my birth control!



His back up plan: a Lupron Depot injection which is pretty much an injection that shuts down your ovaries and uterus for about 6 months aka a temporary hysterectomy. Seems terrifying. 

The catch? Instead of PMS pain, you get to become menopausal at the ripe age of 25! Hard pass on that one. Explaining hot flashes on a first date is something I just can't mentally handle right now. And I am trying my best not to screw myself over before I leave for London WHICH AS OF NOW IS SEPTEMBER 6! 



One step closer...



Monday, October 6, 2014

BEST. WEEK. EVER

As a chronic pain sufferer, "a good day" is a much different thing than a normal person's "good day." They range from "at-least-I-took-a-shower-today" days to "Felt-good-enough-to-put-on-a-bra" days to "got-groceries-and-did-nothing-else" days to "make-a-healthy-breakfast-and-do-a-real-workout" days and, for the record, right now those are my best days.


#thestruggle


The comparison to what may be considered a good day is laughable (because everything has to be) compared to the pre-pain days in NY. I could go on, but even for me, my life in New York seemed relatively unreal. That's also the reason why I find it so ironic to be back here in PA--went from having 3845903850498 things going on at once to literally nothing but trying desperately to control my body.




ANYWAY.  I drove down to Philly with my mom (about an hour and half), shopped for 6-7 hours and drove back…NO PAIN. I don't remember the last time this happened and it's exciting. I was able to go to the gym every day this week.  I had some pain in my lower left back from a nasty trigger point that comes and goes, but I have to factor in PMS will always exacerbate my symptoms and pain and so do injections post procedure.



This seems to be the general formula to be as humanely pain free as possible:



1) Sleep. You have to. Just do it. Honestly, I need at least 8 hours. Right now I'm doing best with 10-11 uninterrupted hours of sleep. If I wake up in the morning knowing I didn't sleep the night before it is a GIVEN you will feel like shit the next day.



2) Eating well. I have a blog post ready about food that has so much going on, it's actually daunting to think about. What I've been doing: eliminated alcohol and coffee, home make EVERYTHING as much as I can, eat the least amount of processed foods I can, complex whole grains, a lot nutribullets, a lot of iced green tea, a lot of water, a lot of really good spinach/kale salads and fruits as snacks (which I'm still working on). I naturally gravitate to bagels, Shake Shack, pizza and ice cream so give me a break! These are big steps for me!



3) Exercise. Gyms seem daunting when you have pain. I have bought strengthening bands so I do what I can with how I feel. If my pain is barely gym doable, I'll go to the pool and do my pool exercises. Even better than that, I go and do my land strengthening and exercises. If I don't feel good enough to go out, I use the treadmill at our house or try and walk the dog. Sometimes if that is okay, I add bands to that regiment. End goal is still back to my reformer pilates trainer.



4) Misc. China gel, TENSunit, Chiro 1-2/month, lidocaine trigger point injections 1-2/month, masseuse 1-2/month. Therapist 1-2/month. Also thought this looked like a helpful visual for using your TENSunit.



Knock on wood, things seem to be going well with some upcoming really awesome potential possibilities for the future!



Things I'm currently looking into--lidocaine patches for trigger points, essential oils, homemade pain salves/body washes, kinesio tape, traction tables--I'll keep everyone posted!