Sunday, February 8, 2015

Issues With My Tissues and Getting Into My Masters Program

Hi all.

It's been a wild week. First off (and the best news), I can finally say I have officially gotten in (so far) to 1/2 universities I applied to. I may have a chance of even getting a full ride scholarship. I'm still waiting to hear back from my top choice.

Just FYI to the other chronic pain people, I had listed myself as disabled for this school. You should know that during my interview not one question was brought up asking me about my condition. I love that. With the disability support, I will get the accommodations I need in case I have a flare and can't make to class, have to get an extension for a test or paper. I don't know how I'll need to be honest but it's just a security blanket at this point. It is immensely comforting to know that it's there. The UK seems to be much more sympathetic to disability.

I WILL OFFICIALLY BE MOVING TO LONDON IN AUGUST. Can you believe it? Can you fucking believe it? After all this time, everything that's happened has finally spiral into good news and something productive.

For the very few I may come across who are considered disabled and plan on studying and living abroad, I will continue to post tips/ideas/suggestions for moving and settling into a new, international city as I figure them out.

The next day, I finally had my first appointment with the top geneticist in the country, Dr. Francomano at GBMC. She was amazing, it was amazing. I was there for HOURS and finally got my official diagnosis: Hypermobile Type Ehlers-Danlos Syndrome (a hereditary connective tissue disorder) with strong suspicion of Mast Cell Activation Disorder. To be honest, it was a little overwhelming and I'm currently not in the condition to go into great detail right now.

There are a lot of explanations I need to provide and tests I will be doing after my breast reduction surgery on February 19th. I will make separate posts about each/all of these things to explain further because, from the people I've told so far, there are A LOT of questions. If anyone reading as any questions at this point, feel from to email me from the "contact" section or post a comment and I will be sure to get back in touch with you.

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